Beware genetic paternalism

Razib Khan has a post raising the alarm over a potential batch of new regulations running through the FDA that will restrict consumer’s access to their own genetic data.  He includes this video:

It is depressing to see this sort of regulatory capture happening so publicly and blatantly in Congress, though I suppose it isn’t surprising.  After all, the fraction of the population that’s sequenced their genomes to date is tiny and doing so is beyond most people’s desires and budgets for now (including my own) and there is a rather powerful doctors’ lobby that serves to benefit if consumers are forced to pay an extra, unnecessary party in order to access their own genetic information.

So, I think that this is something worth passing on, since the AMA doesn’t need any further restrictions on patients’ rights.


About Meng Bomin

Real name Benjamin Main, I am a graduate of Grinnell College with a degree in Biological Chemistry.
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